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Illuminate Hypersomnia Adjunct Scientific Meeting

Tackling Drug Development Challenges for Idiopathic Hypersomnia

On February 13, 2025, from 12-2 pm Eastern Time, Sleep Consortium hosted the Illuminate Hypersomnia Adjunct Scientific Meeting. This virtual scientific session addressed critical challenges in drug development for idiopathic hypersomnia (IH), as identified during the groundbreaking Illuminate Hypersomnia Externally-Led Patient-Focused Drug Development (EL-PFDD) meeting held on April 11, 2024.

The Illuminate Hypersomnia Adjunct Scientific Meeting brought together experts in the fields of sleep medicine, pharmaceutical research, regulatory science, medical affairs, and patient advocacy. Presenters and panelists focused on collaborative efforts to overcome key scientific and drug development hurdles in the development of effective treatments for idiopathic hypersomnia. 

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View the meeting program, including the agenda, speakers, and discussion questions

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meeting report

Illuminate Hypersomnia Adjunct Scientific Meeting Agenda

February 13, 2025, 12:00 pm – 2:00 pm Eastern Standard Time

TOPIC

SPEAKER

Welcome & Introductions

Sleep Consortium
Kim McCleary, Kith Collective

Recap of Illuminate Hypersomnia EL-PFDD

Lynn Marie Trotti, MD, MSc

Topic #1 Presentation: Brain Fog

Michael Thorpy, MB, ChB

Topic #1 Panel Discussion: Approaches to Better Defining and Measuring Brain Fog in IH

Kim McCleary (Moderator)
Lucie Barateau, MD, PhD
Kiran Maski, MD, MPH
Anne Marie Morse, DO
David Plante, MD, PhD

Topic #2 Presentation: Barriers to Participation in Research Studies

Emmanuel Mignot, MD, PhD

Topic #2 Panel Discussion: Considerations for Recruiting and Retaining People with IH in Research Studies

Kim McCleary (Moderator)
Omavi Bailey, MD, MPH
Bruce Corser, MD
Yves Dauvilliers, MD, PhD
Anne Marie Morse, DO

Industry Roundtable: Discussion of Unmet Needs for IH Identified by the Illuminate Hypersomnia Initiative

Industry Representatives

Recap, Next Steps, and Closing Remarks

Sleep Consortium
Kim McCleary

Thank you to the organizations who have partnered with us for the Illuminate Hypersomnia initiative:

(Host organization)

Thank you to these generous sponsors for unrestricted educational grants in support of the Illuminate Hypersomnia Adjunct Scientific Meeting:

Alkermes
avadel
centessa
harmony
jazz
takeda logo
zevra

For questions or more information about the Illuminate Hypersomnia Adjunct Scientific Meeting, reach out to us via email at PFDD@sleepconsortium.org.

Submit a Written Comment

Submit a comment on the Illuminate Hypersomnia Adjunct Scientific meeting topics using the form below. Your perspectives on better defining and measuring brain fog and considerations for recruiting and retaining people with IH in research studies may be reflected in the post-meeting summary report.