{"id":3883,"date":"2024-03-05T14:55:09","date_gmt":"2024-03-05T14:55:09","guid":{"rendered":"https:\/\/sleepconsortium.org\/?page_id=3883"},"modified":"2024-04-12T13:04:58","modified_gmt":"2024-04-12T13:04:58","slug":"live","status":"publish","type":"page","link":"https:\/\/sleepconsortium.org\/es\/illuminate-hypersomnia\/live\/","title":{"rendered":"Iluminar la hipersomnia en directo"},"content":{"rendered":"<div data-elementor-type=\"wp-page\" data-elementor-id=\"3883\" class=\"elementor elementor-3883\" data-elementor-post-type=\"page\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-02e073d elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"02e073d\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-bd56dbf\" data-id=\"bd56dbf\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-9cb2622 elementor-widget elementor-widget-image\" data-id=\"9cb2622\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/sleepconsortium.org\/wp-content\/uploads\/elementor\/thumbs\/logo-qgf5bc70pdzwjkwqnxvdytgpyxgrrpj276y5s35kem.png\" title=\"\" alt=\"logo\" loading=\"lazy\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-ec95b16\" data-id=\"ec95b16\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-3d5a08a elementor-widget__width-initial elementor-widget-tablet__width-inherit elementor-widget elementor-widget-text-editor\" data-id=\"3d5a08a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p class=\"p1\"><strong style=\"font-size: 22px;\">Usted es el experto<\/strong> sobre c\u00f3mo es vivir con hipersomnia idiop\u00e1tica<\/p>\n<p class=\"p1\">Juntos lograremos una mejor comprensi\u00f3n y <strong style=\"color: #F8CA10;font-size: 22px;\">un nuevo amanecer para el tratamiento y la atenci\u00f3n<\/strong><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-be6f090 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"be6f090\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-8c2d6ee\" data-id=\"8c2d6ee\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-e031ede elementor-widget elementor-widget-html\" data-id=\"e031ede\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"html.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<iframe width=\"640\" height=\"360\" src=\"https:\/\/www.youtube.com\/embed\/EkBD7UGR8ec?si=TFblx-_hstmuk0c-\" title=\"Reproductor de v\u00eddeo YouTube\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" allowfullscreen><\/iframe>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-dec54b8 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"dec54b8\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-873e1a9\" data-id=\"873e1a9\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-69253ed elementor-widget elementor-widget-text-editor\" data-id=\"69253ed\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<h2>Env\u00ede un comentario por escrito antes del 11 de mayo<\/h2>\n<p class=\"p1\"><span class=\"s1\"><b>Env\u00ede a continuaci\u00f3n un comentario sobre uno o m\u00e1s de los siguientes temas para su inclusi\u00f3n en el Informe La Voz del Paciente de la EL-PFDD\n<\/b><\/span><\/p>\n\n<h2 style=\"text-align: center;\"><span style=\"color: #000000; font-weight: normal; font-size: 23px;\">TEMAS:<\/span><\/h2>\n<ul>\n \t<li style=\"text-align: left;\"><strong>De todos los s\u00edntomas y efectos sobre la salud de la HI, \u00bfcu\u00e1les 1-3 tienen un impacto m\u00e1s significativo en su vida o en la de su ser querido?<\/strong><\/li>\n \t<li style=\"text-align: left;\"><strong style=\"font-size: 16px;\">\u00bfC\u00f3mo le afecta la HI a usted o a su ser querido en los mejores y en los peores d\u00edas? Describa sus mejores y peores d\u00edas.<\/strong><\/li>\n \t<li style=\"text-align: left;\"><strong style=\"font-size: 16px;\">\u00bfC\u00f3mo han cambiado sus s\u00edntomas o los de su ser querido con el tiempo? \u00bfC\u00f3mo ha cambiado con el tiempo la capacidad para hacer frente a los s\u00edntomas?<\/strong><\/li>\n \t<li style=\"text-align: left;\"><strong style=\"font-size: 16px;\">\u00bfExisten actividades espec\u00edficas que sean importantes para usted o su ser querido y que usted o ellos no puedan realizar en absoluto o tan plenamente como a usted o a ellos les gustar\u00eda debido al DI?<\/strong><\/li>\n \t<li style=\"text-align: left;\"><strong style=\"font-size: 16px;\">\u00bfQu\u00e9 es lo que m\u00e1s teme cuando usted o su ser querido se hacen mayores? \u00bfQu\u00e9 es lo que m\u00e1s le preocupa del estado de salud de su ser querido?<\/strong><\/li>\n \t<li style=\"text-align: left;\"><strong style=\"font-size: 16px;\">\u00bfQu\u00e9 hace actualmente para controlar sus s\u00edntomas de HI o los de su ser querido y c\u00f3mo decidi\u00f3 la estrategia de tratamiento?<\/strong><\/li>\n \t<li style=\"text-align: left;\"><strong style=\"font-size: 16px;\">\u00bfEn qu\u00e9 medida le ayudan estas estrategias a controlar los s\u00edntomas m\u00e1s significativos del HI?<\/strong><\/li>\n \t<li style=\"text-align: left;\"><strong style=\"font-size: 16px;\">\u00bfCu\u00e1les son las desventajas m\u00e1s significativas de las estrategias actuales de su ser querido y c\u00f3mo afectan a su vida diaria? (Ejemplos de inconvenientes pueden ser el impacto en la vida diaria, el estigma social, etc.)<\/strong><\/li>\n \t<li style=\"text-align: left;\"><strong style=\"font-size: 16px;\">A falta de una curaci\u00f3n completa, \u00bfqu\u00e9 cosas concretas buscar\u00eda en un tratamiento ideal para la HI? Al considerar un nuevo tratamiento, \u00bfqu\u00e9 factores son importantes para usted?<\/strong><\/li>\n \t<li style=\"text-align: left;\"><strong style=\"font-size: 16px;\">A la hora de considerar un tratamiento para el HI, \u00bfqu\u00e9 factores le resultar\u00edan demasiado gravosos, en t\u00e9rminos de visitas anuales, necesidad de inyecciones, necesidad de cirug\u00eda?<\/strong><\/li>\n<\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-e5ef215 elementor-widget elementor-widget-html\" data-id=\"e5ef215\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"html.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<script type=\"text\/javascript\" src=\"https:\/\/form.jotform.com\/jsform\/240496510530147\"><\/script>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-7101ddc elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"7101ddc\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-8b338fc\" data-id=\"8b338fc\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-c506dc8 elementor-widget elementor-widget-spacer\" data-id=\"c506dc8\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div 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