{"id":3683,"date":"2023-11-07T14:31:46","date_gmt":"2023-11-07T14:31:46","guid":{"rendered":"https:\/\/sleepconsort.wpengine.com\/?p=3683"},"modified":"2023-11-07T16:16:02","modified_gmt":"2023-11-07T16:16:02","slug":"announcing-the-illuminate-hypersomnia-initiative","status":"publish","type":"post","link":"https:\/\/sleepconsortium.org\/es\/news\/announcing-the-illuminate-hypersomnia-initiative\/","title":{"rendered":"Anuncio de la iniciativa \"Iluminar la hipersomnia"},"content":{"rendered":"
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Anuncio de la iniciativa \"Iluminar la hipersomnia<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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El Consorcio del Sue\u00f1o organiza esta iniciativa sin precedentes en colaboraci\u00f3n con organizaciones de defensa de los pacientes que atienden a la comunidad de IH.<\/b>\u00a0El Consorcio del Sue\u00f1o ha sido aprobado por la Administraci\u00f3n de Alimentos y Medicamentos de EE.UU. (FDA) para acoger a un\u00a0desarrollo de f\u00e1rmacos centrado en el paciente (PFDD)<\/a>\u00a0reuni\u00f3n centrada en IH. Adem\u00e1s, la iniciativa tambi\u00e9n incluir\u00e1 una encuesta PFDD para garantizar que esta iniciativa refleje las experiencias del mayor n\u00famero posible de personas con HI. Un informe con la \"voz del paciente\" resumir\u00e1 la reuni\u00f3n Illuminate Hypersomnia y la encuesta PFDD para servir como recurso duradero para investigadores, patrocinadores del desarrollo de f\u00e1rmacos, reguladores, profesionales sanitarios y otros. Esta iniciativa es tambi\u00e9n una forma de que los miembros de la comunidad de hipersomnia aprendan unos de otros y se apoyen mutuamente.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tM\u00e1s informaci\u00f3n<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>","protected":false},"excerpt":{"rendered":"

Sleep Consortium organiza esta iniciativa hist\u00f3rica en colaboraci\u00f3n con organizaciones de defensa de los pacientes que sirven a la comunidad de IH. Sleep Consortium ha sido aprobado por la...<\/p>","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[4],"tags":[],"class_list":["post-3683","post","type-post","status-publish","format-standard","hentry","category-news"],"yoast_head":"\nAnnouncing the Illuminate Hypersomnia\u00a0Initiative | Sleep Consortium<\/title>\n<meta name=\"robots\" content=\"noindex, follow\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Announcing the Illuminate Hypersomnia\u00a0Initiative | Sleep Consortium\" \/>\n<meta property=\"og:description\" content=\"Sleep Consortium is hosting this landmark initiative in collaboration with patient advocacy organizations that serve the IH community. 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