{"id":10,"date":"2024-11-26T09:00:00","date_gmt":"2024-11-26T14:00:00","guid":{"rendered":"https:\/\/sleepconsort.wpengine.com\/?page_id=10"},"modified":"2025-04-24T14:24:03","modified_gmt":"2025-04-24T18:24:03","slug":"home","status":"publish","type":"page","link":"https:\/\/sleepconsortium.org\/fr\/","title":{"rendered":"Accueil"},"content":{"rendered":"
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Acc\u00e9l\u00e9rer la recherche et la th\u00e9rapeutique au niveau mondial dans les troubles centraux de l'hypersomnolence et les maladies apparent\u00e9es<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tConnexion au portail DREAMS <\/i><\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\n\t\t\t\t\tL'attente est termin\u00e9e et le portail est maintenant en ligne ! <\/span>\n\t\t\t\t<\/span>\n\t\t\t\t<\/h2>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\"mission\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\"dreams\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Portail de collecte de donn\u00e9es sur le sommeil<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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L'attente est termin\u00e9e ! Notre portail est maintenant en ligne. Veuillez cliquer sur le bouton ci-dessous pour vous connecter.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tConnexion au portail<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tVoir la soir\u00e9e de lancement<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n\n\t\t
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A propos de Sleep Consortium<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Sleep Consortium est une organisation \u00e0 but non lucratif (501(c)(3)) cr\u00e9\u00e9e pour acc\u00e9l\u00e9rer la recherche de nouvelle g\u00e9n\u00e9ration, la compr\u00e9hension de la maladie et le d\u00e9veloppement de th\u00e9rapies pour les personnes atteintes de troubles centraux de l'hypersomnolence (TCSH) et de maladies apparent\u00e9es.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Derni\u00e8res nouvelles<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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R\u00e9sum\u00e9 de la r\u00e9union scientifique auxiliaire d'Illuminate Hypersomnia<\/a><\/h3>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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24 avril 2025<\/b><\/span><\/p>

Le 11 avril 2024, le Sleep Consortium a organis\u00e9 la r\u00e9union Illuminate Hypersomnia Externally Led Patient Focused Drug Development (EL-PFDD). Un r\u00e9sum\u00e9 de la r\u00e9union est maintenant disponible.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Le Consortium<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\"consortium\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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Patients et soignants<\/a><\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Partager les informations d\u00e9tenues par les patients en participant au programme de collecte de donn\u00e9es sur le sommeil est l'une des choses les plus importantes que vous puissiez faire pour changer les choses.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tEn savoir plus <\/i><\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
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Chercheurs et industrie<\/a><\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Le principal obstacle \u00e0 la rapidit\u00e9 et \u00e0 la productivit\u00e9 de l'innovation dans le domaine des maladies rares est le co\u00fbt et le manque d'acc\u00e8s fiable ou ouvert \u00e0 des donn\u00e9es compl\u00e8tes sur les patients.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tEn savoir plus <\/i><\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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Lignes directrices pour les patients<\/a><\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Comment vivre avec un trouble du sommeil ?<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tEn savoir plus <\/i><\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\"ai\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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Illuminer l'hypersomnie<\/a><\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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D\u00e9veloppement de m\u00e9dicaments ax\u00e9s sur le patient<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tEn savoir plus <\/i><\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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\n\t\t\t\t\t\tLe consortium du sommeil adopte une nouvelle approche audacieuse de la recherche sur le sommeil en pla\u00e7ant le patient au centre de ses efforts. Cette initiative exige que le patient soit le moteur de nouvelles consid\u00e9rations de recherche, qu'il soit propri\u00e9taire de ses propres donn\u00e9es et qu'il serve de partenaire inestimable aux chercheurs au niveau international. \t\t\t\t\t<\/div>\n\t\t\t\t\tAnne Marie Morse, directrice du service de neurologie infantile et de m\u00e9decine p\u00e9diatrique du sommeil, Geisinger, Janet Weis Children's Hospital<\/span><\/cite>\t\t\t\t<\/div>\n\t\t\t\t\t\t
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\n\t\t\t\t\t\t\"anne\n\t\t\t\t\t\t\t\t\t\t\t\t\t
<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t
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\n\t\t\t\t\t\tPour percer les myst\u00e8res de la narcolepsie et acc\u00e9l\u00e9rer la recherche transformationnelle, il faudra une technologie sophistiqu\u00e9e et un bon vieux travail d'\u00e9quipe. C'est pourquoi je pense que la nouvelle plateforme de collecte de donn\u00e9es des patients du Sleep Consortium est en passe de devenir un moteur essentiel pour les apprentissages, les avanc\u00e9es et les progr\u00e8s centr\u00e9s sur les patients afin d'am\u00e9liorer d'innombrables vies.\t\t\t\t\t<\/div>\n\t\t\t\t\tJulie Flygare, pr\u00e9sidente-directrice g\u00e9n\u00e9rale de Project Sleep<\/span><\/cite>\t\t\t\t<\/div>\n\t\t\t\t\t\t
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\n\t\t\t\t\t\t\"julie\n\t\t\t\t\t\t\t\t\t\t\t\t\t
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\n\t\t\t\t\t\tCette initiative va au-del\u00e0 d'une simple approche de d\u00e9p\u00f4t de donn\u00e9es pour cr\u00e9er une plateforme d'innovation, de collaboration et d'engagement des patients unique en son genre. Elle adopte une approche du 21e si\u00e8cle face \u00e0 un probl\u00e8me qui a des r\u00e9percussions profondes sur un grand nombre de personnes.\t\t\t\t\t<\/div>\n\t\t\t\t\tMichael Grandner, Directeur, Programme de recherche sur le sommeil et la sant\u00e9, Universit\u00e9 de l'Arizona<\/span><\/cite>\t\t\t\t<\/div>\n\t\t\t\t\t\t
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\n\t\t\t\t\t\t\"michael\n\t\t\t\t\t\t\t\t\t\t\t\t\t
<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t
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\n\t\t\t\t\t\tLa vision du Consortium du sommeil d'une collaboration pr\u00e9comp\u00e9titive pour le partage des donn\u00e9es est r\u00e9volutionnaire. RARE-X est honor\u00e9 de soutenir cette pens\u00e9e progressiste, qui acc\u00e9l\u00e9rera v\u00e9ritablement notre compr\u00e9hension des troubles du sommeil, ainsi que le d\u00e9veloppement de th\u00e9rapies. RARE-X est fier de collaborer avec le Consortium du sommeil pour cr\u00e9er une architecture fondamentale pour la collecte de donn\u00e9es dans le domaine du sommeil.\t\t\t\t\t<\/div>\n\t\t\t\t\tCharlene Son Rigby, PDG de RARE-X<\/span><\/cite>\t\t\t\t<\/div>\n\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\"Charlene\n\t\t\t\t\t\t\t\t\t\t\t\t\t
<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\t\t<\/i>\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t
\n\t\t\t\t\t\t\t<\/i>\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t
<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>","protected":false},"excerpt":{"rendered":"

Accelerating Global Research and Therapeutics in Central Disorders of Hypersomnolence and Related Diseases DREAMS Portal Login The wait is over and the Portal is now live! Sleep Data Collection Portal The wait is over! Our portal is now live.\u00a0 Please click the button below to login. Portal Login View Launch Party About Sleep Consortium Sleep […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"inline_featured_image":false,"site-sidebar-layout":"no-sidebar","site-content-layout":"page-builder","ast-site-content-layout":"full-width-container","site-content-style":"unboxed","site-sidebar-style":"unboxed","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"disabled","ast-breadcrumbs-content":"","ast-featured-img":"disabled","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center 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