{"id":3683,"date":"2023-11-07T14:31:46","date_gmt":"2023-11-07T14:31:46","guid":{"rendered":"https:\/\/sleepconsort.wpengine.com\/?p=3683"},"modified":"2023-11-07T16:16:02","modified_gmt":"2023-11-07T16:16:02","slug":"announcing-the-illuminate-hypersomnia-initiative","status":"publish","type":"post","link":"https:\/\/sleepconsortium.org\/fr\/news\/announcing-the-illuminate-hypersomnia-initiative\/","title":{"rendered":"Annonce de l'initiative Illuminate Hypersomnia"},"content":{"rendered":"
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Annonce de l'initiative Illuminate Hypersomnia<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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Le Sleep Consortium organise cette initiative historique en collaboration avec les organisations de d\u00e9fense des patients qui servent la communaut\u00e9 IH.<\/b>\u00a0Sleep Consortium a re\u00e7u l'approbation de la Food and Drug Administration (FDA) des \u00c9tats-Unis pour accueillir un centre de soins de longue dur\u00e9e.\u00a0le d\u00e9veloppement de m\u00e9dicaments ax\u00e9 sur le patient (PFDD)<\/a>\u00a0centr\u00e9e sur les maladies inflammatoires de l'intestin. En outre, l'initiative comprendra \u00e9galement une enqu\u00eate PFDD afin de s'assurer que cette initiative refl\u00e8te les exp\u00e9riences du plus grand nombre possible de personnes souffrant d'HI. Un rapport sur la \"voix du patient\" r\u00e9sumera la r\u00e9union Illuminate Hypersomnia et l'enqu\u00eate PFDD afin de servir de ressource durable pour les chercheurs, les promoteurs de d\u00e9veloppement de m\u00e9dicaments, les autorit\u00e9s de r\u00e9glementation, les professionnels de la sant\u00e9 et d'autres personnes. Cette initiative est \u00e9galement un moyen pour les membres de la communaut\u00e9 de l'hypersomnie d'apprendre les uns des autres et de se soutenir mutuellement.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tEn savoir plus<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>","protected":false},"excerpt":{"rendered":"

Sleep Consortium organise cette initiative historique en collaboration avec les organisations de d\u00e9fense des patients qui servent la communaut\u00e9 IH. Sleep Consortium a \u00e9t\u00e9 approuv\u00e9 par le...<\/p>","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[4],"tags":[],"class_list":["post-3683","post","type-post","status-publish","format-standard","hentry","category-news"],"yoast_head":"\nAnnouncing the Illuminate Hypersomnia\u00a0Initiative | Sleep Consortium<\/title>\n<meta name=\"robots\" content=\"noindex, follow\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Announcing the Illuminate Hypersomnia\u00a0Initiative | Sleep Consortium\" \/>\n<meta property=\"og:description\" content=\"Sleep Consortium is hosting this landmark initiative in collaboration with patient advocacy organizations that serve the IH community. 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