{"id":3708,"date":"2023-11-07T15:35:58","date_gmt":"2023-11-07T15:35:58","guid":{"rendered":"https:\/\/sleepconsort.wpengine.com\/?page_id=3708"},"modified":"2023-11-07T16:06:34","modified_gmt":"2023-11-07T16:06:34","slug":"home-2","status":"publish","type":"page","link":"https:\/\/sleepconsortium.org\/pt\/home-2\/","title":{"rendered":"Home Test"},"content":{"rendered":"
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Acelerar a investiga\u00e7\u00e3o e a terap\u00eautica a n\u00edvel mundial no dom\u00ednio das perturba\u00e7\u00f5es centrais da hipersonol\u00eancia e doen\u00e7as relacionadas<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tAcesso ao portal <\/i><\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Em breve<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Sobre o Sleep Consortium<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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O Sleep Consortium \u00e9 uma organiza\u00e7\u00e3o registada sem fins lucrativos (501(c)(3)) criada para acelerar a investiga\u00e7\u00e3o da pr\u00f3xima gera\u00e7\u00e3o, a compreens\u00e3o da doen\u00e7a e o desenvolvimento de terapias para as pessoas que vivem com Dist\u00farbios Centrais de Hipersonol\u00eancia (CDoH) e doen\u00e7as relacionadas.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\u00daltimas not\u00edcias<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Sleep Consortium lan\u00e7a iniciativa de recolha de dados de doentes do sono para acelerar o desenvolvimento terap\u00eautico<\/strong><\/a><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\t\t\t\tLer mais <\/i><\/a>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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O Cons\u00f3rcio<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Doentes e prestadores de cuidados<\/a><\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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A partilha de informa\u00e7\u00f5es pertencentes aos doentes, participando no programa de recolha de dados sobre o sono, \u00e9 uma das coisas mais importantes que pode fazer para marcar a diferen\u00e7a.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tSaiba mais <\/i><\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
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Investigadores e ind\u00fastria<\/a><\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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O principal desafio que influencia a velocidade e a produtividade da inova\u00e7\u00e3o nas doen\u00e7as raras \u00e9 o custo e a falta de acesso fi\u00e1vel ou aberto a dados completos sobre os doentes.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tSaiba mais <\/i><\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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\n\t\t\t\t\t\tO cons\u00f3rcio do sono adopta uma abordagem nova e arrojada \u00e0 investiga\u00e7\u00e3o do sono, colocando o doente no centro dos seus esfor\u00e7os. Esta iniciativa exige que o doente seja o impulsionador de novas considera\u00e7\u00f5es de investiga\u00e7\u00e3o, que se aproprie dos seus pr\u00f3prios dados e que seja um parceiro inestim\u00e1vel para os investigadores a n\u00edvel internacional. \t\t\t\t\t<\/div>\n\t\t\t\t\tAnne Marie Morse, Diretora de Neurologia Infantil e Medicina Pedi\u00e1trica do Sono, Geisinger, Janet Weis Children's Hospital<\/span><\/cite>\t\t\t\t<\/div>\n\t\t\t\t\t\t
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\n\t\t\t\t\t\t\"anne\n\t\t\t\t\t\t\t\t\t\t\t\t\t
<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t
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\n\t\t\t\t\t\tDesvendar os mist\u00e9rios da narcolepsia e acelerar a investiga\u00e7\u00e3o transformacional vai exigir tecnologia sofisticada e o bom e velho trabalho de equipa. \u00c9 por isso que acredito que a nova plataforma de recolha de dados dos doentes do Sleep Consortium est\u00e1 preparada para se tornar um motor essencial para a aprendizagem, os avan\u00e7os e o progresso centrado no doente, a fim de melhorar in\u00fameras vidas.\t\t\t\t\t<\/div>\n\t\t\t\t\tJulie Flygare, Presidente e Diretora Executiva do Projeto Sleep<\/span><\/cite>\t\t\t\t<\/div>\n\t\t\t\t\t\t
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\n\t\t\t\t\t\t\"julie\n\t\t\t\t\t\t\t\t\t\t\t\t\t
<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t
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\n\t\t\t\t\t\tEsta iniciativa vai al\u00e9m da simples abordagem de reposit\u00f3rio de dados para criar uma plataforma de inova\u00e7\u00e3o, colabora\u00e7\u00e3o e envolvimento dos doentes diferente de tudo o resto. Trata-se de uma abordagem do s\u00e9culo XXI a uma quest\u00e3o que afecta um vasto leque de pessoas de formas muito profundas.\t\t\t\t\t<\/div>\n\t\t\t\t\tMichael Grandner, Diretor, Programa de Investiga\u00e7\u00e3o sobre Sono e Sa\u00fade, Universidade do Arizona<\/span><\/cite>\t\t\t\t<\/div>\n\t\t\t\t\t\t
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\n\t\t\t\t\t\t\"michael\n\t\t\t\t\t\t\t\t\t\t\t\t\t
<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t
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\n\t\t\t\t\t\tA vis\u00e3o do Sleep Consortium de uma colabora\u00e7\u00e3o pr\u00e9-competitiva de partilha de dados \u00e9 inovadora. O RARE-X tem a honra de apoiar esse pensamento progressista, que realmente acelerar\u00e1 nossa compreens\u00e3o dos dist\u00farbios do sono, bem como o desenvolvimento de terapias. O RARE-X orgulha-se de colaborar com o Sleep Consortium para criar uma arquitetura fundamental para a recolha de dados no espa\u00e7o do sono.\t\t\t\t\t<\/div>\n\t\t\t\t\tCharlene Son Rigby, Diretora Executiva da RARE-X<\/span><\/cite>\t\t\t\t<\/div>\n\t\t\t\t\t\t
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\n\t\t\t\t\t\t\"Charlene\n\t\t\t\t\t\t\t\t\t\t\t\t\t
<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t
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<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>","protected":false},"excerpt":{"rendered":"

Accelerating Global Research and Therapeutics in Central Disorders of Hypersomnolence and Related Diseases Portal Login Coming Soon About Sleep Consortium Sleep Consortium is a registered not-for profit (501(c)(3)) organization created to accelerate next generation research, disease understanding and therapy development for those living with Central Disorders of Hypersomnolence (CDoH) and related diseases. Learn More Latest […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"inline_featured_image":false,"site-sidebar-layout":"no-sidebar","site-content-layout":"page-builder","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"disabled","ast-breadcrumbs-content":"","ast-featured-img":"disabled","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"class_list":["post-3708","page","type-page","status-publish","hentry"],"yoast_head":"\nSleep Consortium<\/title>\n<meta name=\"description\" content=\"We are a non-profit organization created to accelerate research, understanding and therapy for those living with Central Disorders of Hypersomnolence.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sleepconsortium.org\/pt\/home-2\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Sleep Consortium\" \/>\n<meta property=\"og:description\" content=\"We are a non-profit organization created to accelerate research, understanding and therapy for those living with Central Disorders of Hypersomnolence.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/sleepconsortium.org\/pt\/home-2\/\" \/>\n<meta property=\"og:site_name\" content=\"Sleep Consortium\" \/>\n<meta property=\"article:modified_time\" content=\"2023-11-07T16:06:34+00:00\" \/>\n<meta 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