{"id":3683,"date":"2023-11-07T14:31:46","date_gmt":"2023-11-07T14:31:46","guid":{"rendered":"https:\/\/sleepconsort.wpengine.com\/?p=3683"},"modified":"2023-11-07T16:16:02","modified_gmt":"2023-11-07T16:16:02","slug":"announcing-the-illuminate-hypersomnia-initiative","status":"publish","type":"post","link":"https:\/\/sleepconsortium.org\/pt\/news\/announcing-the-illuminate-hypersomnia-initiative\/","title":{"rendered":"An\u00fancio da iniciativa Illuminate Hypersomnia"},"content":{"rendered":"
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An\u00fancio da iniciativa Illuminate Hypersomnia<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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O Sleep Consortium est\u00e1 a organizar esta iniciativa hist\u00f3rica em colabora\u00e7\u00e3o com organiza\u00e7\u00f5es de defesa dos doentes que servem a comunidade da IH.<\/b>\u00a0O Sleep Consortium foi aprovado pela Food and Drug Administration (FDA) dos EUA para acolher um\u00a0desenvolvimento de medicamentos centrado no doente (PFDD)<\/a>\u00a0reuni\u00e3o centrada na HI. Al\u00e9m disso, a iniciativa tamb\u00e9m incluir\u00e1 um inqu\u00e9rito PFDD para garantir que esta iniciativa reflecte as experi\u00eancias do maior n\u00famero poss\u00edvel de pessoas com HI. Um relat\u00f3rio sobre a \"voz do doente\" resumir\u00e1 a reuni\u00e3o Illuminate Hypersomnia e o inqu\u00e9rito PFDD para servir de recurso duradouro para investigadores, patrocinadores do desenvolvimento de medicamentos, entidades reguladoras, profissionais de sa\u00fade e outros. Esta iniciativa \u00e9 tamb\u00e9m uma forma de os membros da comunidade da HI aprenderem e apoiarem-se mutuamente.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tSaiba mais<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>","protected":false},"excerpt":{"rendered":"

O Sleep Consortium est\u00e1 a organizar esta iniciativa hist\u00f3rica em colabora\u00e7\u00e3o com organiza\u00e7\u00f5es de defesa dos doentes que servem a comunidade da IH. O Sleep Consortium foi aprovado pelo...<\/p>","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[4],"tags":[],"class_list":["post-3683","post","type-post","status-publish","format-standard","hentry","category-news"],"yoast_head":"\nAnnouncing the Illuminate Hypersomnia\u00a0Initiative | Sleep Consortium<\/title>\n<meta name=\"robots\" content=\"noindex, follow\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Announcing the Illuminate Hypersomnia\u00a0Initiative | Sleep Consortium\" \/>\n<meta property=\"og:description\" content=\"Sleep Consortium is hosting this landmark initiative in collaboration with patient advocacy organizations that serve the IH community. 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