Benefits To Patients
Sharing patient owned information by participating in the sleep data collection program is one of the most important things that we can do to make a difference.
Why Join the Platform?
When you access the Sleep Consortium data collection platform, you not only create your own medical/clinical database, but you will also help accelerate research, the development of new therapies and expand the understanding of sleep disorders interconnecting with rare and non-rare research-ready domains.
The Sleep Consortium data collection portal, provides patients (and caregivers) with controlled access, enabled by RARE-X—a 501(c)(3) specializing in data security, governance, consent, and support.
How to Join the Platform
The Patient Portal on the RARE-X platform will be launched in May 2022. An informational webinar explains step-by-step, how to login and complete the sleep survey.
RARE-X is a 501(c) (3) whose mission aligns with Sleep Consortium. In addition, our partnership provides the following:
- Governance (exceeding HIPPA standards)
- Legal support
- Inter-connection of data across multiple disease spaces
- Acceleration of research in CDoH and drug development
- Tech support and portal domain maintenance/updates