The sleep consortium takes a bold new approach to sleep research putting the patient in the center of its efforts. This initiative demands that the patient be the driver of new research considerations, have ownership of their own data, and serve as an invaluable partner to researchers internationally.

Unraveling the mysteries of narcolepsy and accelerating transformational research will require sophisticated technology and good-old-fashion teamwork. This is why I believe the Sleep Consortium’s new patient data collection platform is poised to become a critical driver for learnings, advancements, and patient-centered progress to improve countless lives.

This initiative goes beyond the simple data repository approach to create a platform for innovation, collaboration, and patient engagement unlike anything else. It takes a 21st-century approach to an issue that impacts a wide range of people in many profound ways.

The Sleep Consortium’s vision of a precompetitive data sharing collaborative is groundbreaking. RARE-X is honored to support this progressive thinking, which will truly accelerate our understanding of sleep disorders, as well as therapy development. RARE-X is proud to collaborate with the Sleep Consortium to create a foundational architecture for data collection in the sleep space.