Accelerating Global Research and Therapeutics in Central Disorders of Hypersomnolence and Related Diseases
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Sleep Data Collection Portal
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About Sleep Consortium
Sleep Consortium is a registered not-for profit (501(c)(3)) organization created to accelerate next generation research, disease understanding and therapy development for those living with Central Disorders of Hypersomnolence (CDoH) and related diseases.
Latest News
April 24, 2025
On April 11, 2024, Sleep Consortium hosted the Illuminate Hypersomnia Externally Led Patient Focused Drug Development (EL-PFDD) Meeting, A summary of the meeting is now available.
The Consortium

Sharing patient owned information by participating in the sleep data collection program is one of the most important things that you can do to make a difference.
The primary challenge influencing the speed and productivity of innovation in rare disease is cost and the lack of reliable or open access to comprehensive patient data.



