News

We’re excited to announce a new initiative, Illuminate Brain Fog. This research project aims to improve the way brain fog is defined and measured in people living with Central Disorders of Hypersomnolence (CDoH) – including narcolepsy (with and without cataplexy) and idiopathic hypersomnia (IH). We invite adults affected by narcolepsy and IH to enroll in […]

West Palm Beach, FL — November 26, 2024 – The Sleep Consortium, in collaboration with a coalition of partner organizations and sponsors, is pleased to announce the Illuminate Hypersomnia Adjunct Scientific Meeting, scheduled for February 13, 2025, from 12:00 – 2:00 p.m. EST. This virtual scientific session aims to address critical challenges in drug development

The Sleep Consortium, in partnership with a coalition of global sleep-related patient advocacy organizations, proudly announces publication of the “Voice of the Patient” report on idiopathic hypersomnia (IH).

Sleep Consortium, in partnership with leading sleep-related patient advocacy organizations, the global patient community, and key industry stakeholders, is thrilled to announce the launch of the Sleep Data Collection Platform (DCP).

Sleep Consortium is hosting this landmark initiative in collaboration with patient advocacy organizations that serve the IH community. Sleep Consortium has been approved by the…

Sleep Consortium is hosting this landmark initiative in collaboration with patient advocacy organizations that serve the IH community. Sleep Consortium has been approved by the…

Sleep Consortium Launches Sleep Patient Data Collection Initiative to Accelerate Therapeutic Development Sleep Consortium and RARE-X, the Global Genes research program and patient-owned data collection platform, to collaborate on the Sleep Data Collection Initiative to accelerate the development of effective treatments for central disorders of hypersomnolence (CDoH) and related conditions. Sleep Consortium (SC) and RARE-X,