Partenariats pour la défense des intérêts des patients
and Affiliated Organizations
Sleep Consortium is dedicated to direct collaboration with patients and the patient advocacy community as we seek to create an ecosystem of data in Sleep Health. As a collective of organizations, we believe that effective and meaningful partnerships drive progress and ultimately accelerate disease understanding and therapy development. We also believe that partnerships require a shared perspective and would encourage you to visit our Vision and Core Values page for a full understanding of our aims and commitment to equity and a culture of inclusion—values that are paramount to the mission of Sleep Consortium and inform our direction and agenda.
Joining the Consortium is free to PAG members and affords the following benefits:
- Provides your patient community with access to the global data patient portal (link can be embedded on individual websites)
- Host PAG registries on the data collection portal (in the cloud) and connect registries with existing data across disease spaces
- Provides access to consented federated data within the portal (including but not limited to registries)
- Access to first-of-its-kind research informing best support of patient needs and aligning new discoveries yielded by ethical data sharing you’re your organizations’ innovative programming
- Dialogue with world leading researchers and Industry partners to influence, inform and direct pre-clinical investigations during advisory meetings and specific data projects
Bettering the lives of people living with sleep disorders is our goal–one that is reflected in our current collaboration with global advocacy groups. We would like to acknowledge and thank the following for early championing and continued sharing of the data collection portal platform as we embark together on a new era of sleep research.
